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    • Parental Decision Making for Fragile X Syndrome Clinical Trials 

      D'Amanda, Celeste; 0000-0001-5443-5040 (Johns Hopkins UniversityUSA, 2017-01-30)
      Background: There is a paucity of research evaluating parental proxy decision making for pediatric clinical trial participation. Fragile X Syndrome (FXS) is a rare genetic condition involving intellectual disability as its ...