Schmitt Burr, Kristi

Abstract

Bringing Light and Hope to a Rare Disease Krist Schmitt Burr has Basal Cell Carcinoma Nevus Syndrome (BCCNS), a rare genetic disorder that affects the way the body grows and may lead to various forms of cancer, especially basal cell carcinoma, a form of skin cancer. After having two affected children, Kristi founded the Basal Cell Carcinoma Nevus Syndrome Life Support Network, the only organization in North America dedicated to supporting families with BCCNS.