Regulatory approaches to reproductive testing

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dc.contributor.author Knoppers, B
dc.contributor.author Isasi, R
dc.date.accessioned 2006-12-04T22:01:49Z
dc.date.available 2006-12-04T22:01:49Z
dc.date.issued 2004-09-23
dc.identifier.citation Human Reproduction (2004) 19(12): 2695-2701. en
dc.identifier.uri http://jhir.library.jhu.edu/handle/1774.2/994
dc.description.abstract This report analyses the ethical and legal aspects of reproductive genetic testing in 11 countries (Australia, Austria, Canada, France, Germany, India, Israel, Japan, The Netherlands, Switzerland and the UK). The legal status of reproductive genetic testing in the countries under analysis is difficult to generalize due to the different regulatory systems adopted. These approaches are a reflection of the legal traditions and cultural and socio-religious beliefs which inform and shape public policy on assisted reproductive technologies and genetic testing. We divide approaches into two groups: public ordering (legislative, top-down approach) and private ordering (non-legislative, bottom-up approach). Even limiting our analysis to a number of countries that span the range from restrictive to pragmatic approaches, there is remarkable symmetry in both the (i) substantive requirements (i.e. gravity, health indications generally) and (ii) procedural safeguards (i.e. informed consent, counselling, confidentiality, civil status, oversight and accreditation) surrounding reproductive genetic testing. Indeed, irrespective of whether a country adopts a prohibitive or a permissive approach through legislation or self-regulation or a mix of both, the ultimate decision is--and should continue to be--a medical one. Nowhere is this more evident than in the substantive requirements. en
dc.description.provenance Submitted by Claire Twose (ctwose1@jhmi.edu) on 2006-12-04T04:29:00Z No. of bitstreams: 1 RegulatingReproGenetics.pdf: 90448 bytes, checksum: caaf5bc322a613f1fd15c9106e5c99b5 (MD5) en
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dc.description.provenance Made available in DSpace on 2006-12-04T22:01:49Z (GMT). No. of bitstreams: 1 RegulatingReproGenetics.pdf: 90448 bytes, checksum: caaf5bc322a613f1fd15c9106e5c99b5 (MD5) Previous issue date: 2004-09-23 en
dc.format.extent 90448 bytes
dc.format.mimetype application/pdf
dc.language.iso en_US en
dc.publisher Genetics and Public Policy Center en
dc.subject Government Regulation en
dc.subject Prenatal Diagnosis en
dc.subject Genetic Screening en
dc.title Regulatory approaches to reproductive testing en
dc.type Article en

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